INHA FAMILY PUBLICATIONS
All INHA family publications are listed below and we encourage you to print a copy, download or share this page with your family, friends and colleagues.
Click on one of the links below to download the guides directly to either desktop or mobile device, or continue reading through the page and click on the previews provided – each will open up in .pdf format that you can save or print at your leisure.
INHA Family Publications download links:
- click here for our information leaflet and find out more about the INHA and what we do
- click here to download Better Together guide
- click here to download Back to Basics booklet
- click here to download our 10 Things To Know about 1 in 10 leaflet
- click here to download our NICU Milestone Cards
- click here to download our Pledge Cards
- click here to download Next Steps – The Journey Home leaflet to help you prepare for bringing your baby home
- click here to download Sensory Processing Disorder’information booklet
- click here to download From Surviving to Thriving booklet
- click here to download Bereavement Booklet
- click here to download the Loss in a Multiple Pregnancy – A Guide for Staff booklet
- click here to download the Surviving Twin Booklet
- click here to download When your baby has died: a guide to coping with grief & loss
- click here to download Loss in a multiple pregnancy – a guide for parents
- click here to download Loss Memoir – Multiple pregnancy
- click here for the Purple Butterfly template – an incubator symbol to indicate a loss of a sibling in multiple pregnancy
- click here to download our Self-Care for the NICU Parent Booklet
- click here to access the Retinopathy of Prematurity Patient Information Leaflet
INHA – Irish Neonatal Health Alliance – Who We Are & What We Do
Click here to download our information leaflet.
Mother’s Day as a Bereaved Mom
If you are a bereaved mom, Mother’s Day, and the lead up to it, may be difficult for you. You might find yourself beginning to think about how you are going cope on Mother’s Day and what you might do on Mother’s Day to remember and include your baby who has died.
As a way of acknowledging and including your baby on Mother’s Day, we have created two beautiful, printable Mother’s Day card for you to choose from (see below). Just print off one of the cards (you will need a home printer) and write in your baby’s name, write a note to your baby in the picture frame provided and colour in the image on the card in your baby’s memory. You can then choose to place the card somewhere in your home, at your baby’s grave, in your baby’s keepsake box for example.
Self-care on Mother’s Day
The lead up to the Mother’s Day, and the day itself, can be a worry for you but there are small things that you can do to get through it. Think about things that you might do that will help you to feel connected to your baby.
Click on this link to access the Mothers Day Card No.1.
Click on this link to access the Mothers Day Card No.2
Better Together – a family-centered care guide for your premature baby
This guide was created by the INHA to help parents of premature babies be able to take a more active role in the neonatal setting during their baby’s stay in hospital and was launched on the World Prematurity Day 2016.
It is hoped that the Better Together Guide can act as a blueprint for NICUs that are implementing a family-centred approach to care.
Please click here to download a soft copy.
10 Things to Know about 1 in 10
One out of every 10 babies born in the world will be born prematurely. Here in Ireland, there are approximately 4,500 babies born prematurely each year – that is one baby born prematurely every 116 minutes.
Advances in our understanding of how to care for these vulnerable babies means that more and more go on to live normal, healthy and happy lives.
Click here to download our leaflet about the ten things to know to help prepare you and your family if your baby is the 1 in 10.
INHA Purple Butterfly Symbol – Downloadable Template
A Purple Butterfly on an incubator indicates that the baby is a survivor or a multiple pregnancy where one or more babies have passed away. The symbol silently acknowledges the loss and safeguards the family from innocent but potentially heartbreaking questions.
Click here to download the Purple Butterfly Template
Next Steps …. The Journey Home
This booklet has been developed by the INHA to help you prepare to take your baby home from hospital.
Once home, you and your family will be the primary carers for your baby. Bringing your child home is an emotional and sometimes stressful time for families, however it is important to remember that your baby is only coming home because the hospital staff believe that they are well enough to leave the hospital and that you are able to care for them.
The booklet does not include information specific to your baby’s management – it is intended to complement the advice you receive from the staff caring for your baby in the Neonatal Intensive Care Unit or Special Care Baby Unit.
We have tried to include as much general information as possible about what to expect and to look out for when you take your baby home but if you have any specific concerns about your child you should contact your General Practitioner, Public Health Nurse or Paediatrician.
Click here to download our Next Steps information booklet
Back to Basics
This booklet has been developed by the INHA to provide parents and caregivers with additional information specific to caring for and bonding with your premature baby.
Click here to download our Back to Basics information booklet
Sensory Processing Disorder Information Booklet
In 2018 the INHA hosted parent/healthcare professional workshops on Sensory Processing Disorder in Dublin, Waterford, Cork, Limerick and Galway. Did you know that we have a comprehensive Sensory Processing Disorder section on our website? Click here to access further information.
INHA are also privileged to have the services of Paediatric Occupational Therapist, Fiona O’Farrell at our disposal on both the INHA board in addition to our Irish Neonatal Health Alliance Parents Forum on Facebook. You may recognise Fiona from TV3 and eumom.ie where she has regular parenting slots. Fiona has hosted the SPD Workshops on behalf of the INHA and the below booklet was developed to accompany the workshops as well as to provide families and medical professionals with additional information on this important subject.
Click here to download Sensory Processing Disorder Information Booklet