What We Do
FAMILY SUPPORT AND EMPOWERMENT
- Provide pre-conceptual, antenatal and post natal information and education.
- Support and mentor families affected by a premature birth and families with infants in the NICU.
- Empower families to become primary caregivers to their infants.
- Facilitate a platform to access developmental follow up care.
CLICK HERE to download our information leaflet.
CLICK HERE to download our ’10 things to know about the 1 in 10′ leaflet
Having a premature baby can be an expensive time for families i.e additional transport costs, additional childcare costs, loss of earnings, additional parking expenses, increased healthcare costs and increased food/drink costs. There are many financial supports available to families of premature babies in Ireland and this online resource outlines the supports that are available as well as the qualifying criteria.
CLICK HERE to access the INHA’s Financial Supports Information Leaflet
A Purple Butterfly on an incubator indicates that the baby is a survivor or a multiple pregnancy, where one or more babies have passed away.
CLICK HERE to download the Purple Butterfly Template
CLICK HERE to download our ‘Better Together’ leaflet
- Establish an interdisciplinary network in Ireland to advocate for system change.
- Partner with global Parent Advocacy Groups and foster the exchange of best practice information across international borders.
- Mentor and support countries who wish to establish Parent Advocacy Groups.
ENSURE HIGH QUALITY TREATMENT AND CARE
- Improving the education and training for healthcare professionals to ensure that the needs of families are met.
- Providing information for families on topics relevant to the care of their infant in the NICU and beyond.
- Promoting research and providing research support as patient collaborators to improve prevention, treatment and care and long-term health.
- Advocating for improved financial support for families affected by a premature birth.
- Facilitating medical, psychological and sociological support for families.
RAISE PUBLIC AWARENESS
- Targeted media work on World Prematurity Day.
- Social media campaigns.
- Establishing constructive dialogue with political decision makers.
- Engaging with community groups not affected by preterm birth through ancillary campaigns i.e crafting projects etc.
- Providing information workshops to primary, secondary and third level students.
- Fostering the dialogue with healthcare professionals.